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Genetic Counselling Specialist Nurse

Dyddiad hysbysebu:	06 Mai 2025
Cyflog:	£51,883.00 i £58,544.00 bob blwyddyn
Gwybodaeth ychwanegol am y cyflog:	£51883.00 - £58544.00 a year
Oriau:	Llawn Amser
Dyddiad cau:	20 Mai 2025
Lleoliad:	London, N18 1QX
Cwmni:	NHS Jobs
Math o swydd:	Parhaol
Cyfeirnod swydd:	C9391-25-0884

Crynodeb

1. RESPONSIBILITY FOR POLICY AND SERVICE DEVELOPMENT Support the implementation of new developments in antenatal and newborn screening services, in collaboration with other members of the screening team. Contribute to shaping the strategic direction of the service by identifying and implementing solutions that ensure effective delivery of national and local standards, including those set by the National Screening Programmes. Work collaboratively with key stakeholders involved in Antenatal and Newborn Screening, including Maternity and Neonatal Services, Haematology, specialist laboratory clinicians, primary care (GPs and health visitors), other Sickle Cell and Thalassaemia centres, Clinical Commissioners, and Public Health England. Coordinate the antenatal and newborn screening programmes in accordance with national and local policies and guidelines. Serve as a specialist resource, offering expert advice and support to staff within the Trust and the wider community. Support the coordination, delivery, monitoring, and performance management of antenatal and newborn screening services to ensure the provision of a high-quality service for women and their families. Provide support to staff and offer cover for the Service Manager during periods of absence. 2. RESPONSIBILITY FOR LEADING AND MANAGING Develop, implement, and deliver educational programmes to equip staff with the knowledge and skills necessary to provide high-quality care to clients. Facilitate the effective induction of staff in line with national antenatal and newborn screening policies, including the management of women with major haemoglobinopathies during pregnancy. Plan, implement, and deliver both formal and informal training sessions to enhance understanding of genetically inherited haemoglobinopathies across the multidisciplinary team. Participate in basic and continuing education programmes within the College of Nursing and Midwifery to support professional development and service excellence. Maintain and enhance personal professional knowledge through active engagement in local, regional, and national networks, including collaboration with members of the national Haemoglobinopathy teams. Professional / Personal Development Always adhere to the NMC Code of Professional Conduct, Midwives Rules, relevant codes of practice, and Trust policies and procedures. Demonstrate professional behaviour by upholding and adhering to the Trust's Code of Conduct and professional standards. Take responsibility for maintaining accurate, timely, and confidential written and electronic records of patient care in accordance with Trust and professional guidelines. Manage time effectively and take responsibility for planning and prioritising own workload. Maintain professional knowledge, skills, and clinical credibility by regularly undertaking relevant clinical duties. Ensure confidentiality is always maintained in relation to staff, women, and their families. Provide supervision, guidance, and support to other team members as required to promote development and maintain high standards of practice. 3. RESPONSIBILITY FOR INFORMATION RESOURCES 1. Ensure accurate, timely, and confidential documentation of all patient interactions in both written and electronic records, in accordance with Trust policies and professional guidelines. 2. Maintain and update patient information within relevant databases, including the Haemoglobinopathy Register and national screening systems. 3. Interpret, record, and manage complex genetic and screening data to support effective clinical decision-making and continuity of care. 4. Ensure secure handling, storage, and sharing of sensitive personal and medical information, in line with data protection legislation and information governance standards. 5. Contribute to the preparation of reports and data summaries for audits, service evaluations, and submissions to commissioning or regulatory bodies 6. To Create leaflets and posters for patient information and update webpages, communication via social media . 7. Act as a knowledgeable resource for colleagues and external partners in accessing, understanding, and utilising screening and genetic information appropriately. 4. RESPONSIBILITY FOR RESEARCH AND DEVELOPMENT Develop, implement, and agree clinical guidelines and protocols based on current best evidence and practice. Regularly review existing practices and lead the development of strategies to implement changes where improvements are identified. Establish, monitor, and audit the quality of services against standards set by Sickle Cell and Thalassaemia service commissioners and the clinical governance framework. Collect, analyse, and report data on antenatal and newborn screening to monitor service uptake and inform continuous improvement. Identify, measure, and audit clinical outcomes, and provide relevant statistical reports as required for service evaluation and planning. Ensure robust failsafe procedures are in place to confirm that all screen-positive haemoglobinopathy results have been communicated to women, and that appropriate referrals and follow-up actions have been completed within nationally agreed timeframesthis includes failsafe checks during pregnancy and for partner testing. Consistently demonstrate and uphold the Trusts core values: Personal, Safe, Respectful, and Responsible. Promote, facilitate, and participate in research activities within the Sickle Cell and Thalassaemia team to support evidence-based practice and service improvement.