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Paediatric Haemoglobinopathies Clinical Nurse Specialist

Job details
Posting date: 16 February 2026
Salary: £47,810.00 to £54,710.00 per year
Additional salary information: £47810.00 - £54710.00 a year
Hours: Full time
Closing date: 26 February 2026
Location: Nottingham, NG7 2UH
Company: NHS Jobs
Job type: Permanent
Job reference: C9164-26-0176

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Summary

Provision of health education and guidance on self-management to prevent exacerbation of the child or young persons condition to reduce incidences of acute episodes requiring admission to secondary care. Delivery of the newborn screening pathway for the service across the region. This will include delivery of Haemoglobinopathy results to the families of affected babies. Home visits across the region are required to support and educate parents prior to their first clinic visit. Enhancing compliance with preventative actions such as vaccinations and prophylactic medications Addressing social and lifestyle factors that affect condition management and overall quality of life and directing to appropriate local resources. Building trust with children and young people and their parents/carers. Targeted support to high-intensity users of secondary care including directing children and young people into existing NUH programmes for frequent ED attenders. In-reach service to secondary care Close working with multidisciplinary colleagues in primary, secondary, and social care to enhance continuity of care for the children and young people across the region. Enable implementation of individual care plans for children and young people in all settings

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