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Muscular Dystrophy Care Advisor - Paediatrics

Job details
Posting date: 16 February 2026
Salary: £47,810.00 to £54,710.00 per year
Additional salary information: £47810.00 - £54710.00 a year
Hours: Full time
Closing date: 26 February 2026
Location: Nottingham, NG7 2UH
Company: NHS Jobs
Job type: Permanent
Job reference: C9164-26-0173

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Summary

In addition to the brief list above you must familiarise yourself with the full job description and person specification attached to this advert prior toapplying. Meet families at the time of diagnosis, offering accessible information in an appropriate format, listening to their needs and signposting and referring to resources as required, in a time efficient way. Be a single point of access regarding information and advice for those children and young people affected by neuromuscular conditions, their families/carers and the professionals working with them. Work alongside the clinical nurse specialists/AHPs to provide effective co-ordination of hospital and community care for children and young people with Muscular Dystrophy. Autonomously manage their own paediatric caseload; co-ordinating, assessing and supporting children and young people and families/carers affected by Muscular Dystrophy. Have oversight of children and young people admitted into hospital, encouraging and supporting early discharge planning by initiating the conversation early, during the assessment process. Educate children and young people and their families/carers on all aspects of their specific disease and its progress/effect. Provide training and information days for children and young people and their families/carers and other professional groups

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