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Head of Information

Job details
Posting date: 30 July 2025
Salary: £61,500.00 per year
Additional salary information: £61500.00 a year
Hours: Full time
Closing date: 17 August 2025
Location: London, E20 1JQ
Company: NHS Jobs
Job type: Permanent
Job reference: G0002-25-0009

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Summary

The Head of Information has responsibility for the HFEAs information services, including the Register of treatments, the Opening the Register (OTR) service and Information Governance/Records Management service, as well as acting as the organisations Caldicott Guardian, ensuring that ensure that personal information is handled legally, ethically, and appropriately, while maintaining confidentiality. The Register is a database of information about every fertility treatment carried out in the UK, populated with patient data received from clinics, that the HFEA has been responsible for since 1991, the longest running register of its kind in the world. The Head of Information has responsibility for the quality of information held in the database, working with clinics and internal technical and analytical experts. The postholder is a senior member of staff expected to lead these services whilst supporting the HFEAs strategic objectives. The postholder is a member of the Corporate Management Group. The post holder will lead teams with responsibility for specific areas: Maintaining the integrity and security of the data contained within the Register of Treatments. Monitoring the quality of data received from clinics and overseeing the register team and the performance of the team responding to clinic enquiries. Working with clinics to solve data issues and make improvements. Establishing and running a data review board to consider the information collected and any future changes, including to the Data Dictionary. To act as key adviser internally and externally on HFEA Register information including supporting the legal access to register data. Overseeing the Opening the Register and associated donor information services; enabling those entitled to access information about donor treatment and supporting complex and sensitive information and enquiries To work with others across the HFEA in considering future outputs of our data including Choose a Fertility Clinic (CaFC) Managing the Information Governance / Records Manager and associated service. The post holder will advise and work alongside the Head of IT to help the HFEA deliver technology transformation and improved methods for processing and managing information.

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