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Roald Dahl Epilepsy Specialist Nurse for Children and Young People

Job details
Posting date: 25 July 2025
Salary: Not specified
Additional salary information: £38,682 - £46,580 per annum, pro rata
Hours: Part time
Closing date: 24 August 2025
Location: Preston, PR2 9HT
Company: Lancashire Teaching Hospital NHS Foundation Trust
Job type: Permanent
Job reference: 7318682/438-PB3283

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Summary

A Vacancy at Lancashire Teaching Hospitals NHS Foundation Trust.


We have an exciting opportunity to welcome a new addition to our Children's Community and Specialist Nursing Team.

This vacancy has formed due to Karen, the current vacancy holder, being successful within an Integrated Care Board role to improve outcomes and experiences for Children and Young People across Lancashire and South Cumbria.

As a Roald Dahl Specialist Nurse for Children and Young People with Epilepsy, you would be joining a team of experienced and forward-thinking colleagues.

Marie is our other Roald Dahl Specialist Nurse for Epilepsy and within this role you will have opportunities to work alongside Marie, our Consultant Paediatricians with a specialist interest in Epilepsy and Administrative staff.

The service provides advice, guidance and review to Children, Young people whom have received a diagnosis of Epilepsy and their families within a number of settings. These could be within our busy general paediatric department where CYP are seen as an inpatient or outpatient within MDT held clinics/home visits/visits to their educational/childcare settings.


• By working in collaboration with the nursing team and lead Consultant with a specialist interest in Epilepsy, you will provide direct expert nursing care to patients and their families with Epilepsy.
• ‍⚕️ An ability to work as an autonomous practitioner is paramount to assess children holistically, plan, implement, and evaluate evidence-based care.
• ️ You will need to demonstrate a robust understanding of issues related to children with a lifelong health condition and have the capability to work autonomously to safely and effectively support a complex caseload of patients accessing the care pathway.
• In providing a holistic, collaborative, and co-ordinated approach, the key aim is to help reduce the impact of epilepsy on the child and their family. You will be delivering education and training for patients, carers, health care professionals, and other professional groups.
• You will contribute to the continuous improvement of the service through teaching and support of other health care professionals and acting as a source of nursing expertise in this area.
• Also, actively participate in research activity and clinical audits within the specialist area to further enhance awareness and opportunities for evidence-based patient care.
• ‍⚕️ The Epilepsy Specialist Nurse will be a key member to support patients, families, and carers of people with Epilepsy.

We have 10000 fantastic people working hard to deliver quality services to our patients. Whatever your role, you help look after 370,000 people in our local area & give specialist care to 1.5 million people across Lancashire & Cumbria.

Working with us gives you the knowledge and sense of pride that every activity you do genuinely does make a difference to support our patients & staff, ensuring we keep thriving & delivering outstanding healthcare right across our local towns.

You’ll have access to varied development opportunities, learn new skills, meet fab people & do things you’d never have done. You’ll learn about working in a hospital, interacting with people from all different roles to build skills & enhance your career path.

You’ll make an impact, be challenged to think differently, be bold & help innovate to keep improving things. Everything we do centres around patient care which means your role is pivotal and something really to be proud of.

Please see the attached job description for further detail of the requirements for this role.
• To provide specialist advice, support, and education for the child/young person aged 0-16 (up to 19 years if they have SEND), and their families/carers upon diagnosis of Epilepsy and through transition to adult services.
• To act as a nurse specialist in raising the profile of the Epilepsy service, inclusive of the Roald Dahl Charity.
• Provide ongoing care and establish professional, trusting relationships with individual patients, families/carers. Support the child/young person and family with their ongoing management of Epilepsy, within both hospital and community settings.
• Support during the planned transition to adult services.
• Liaising with voluntary agencies as appropriate.
• ‍⚕️ To work within a multidisciplinary team as the specialist clinical nurse resource to other health professionals and allied agencies on issues relating to the care of patients with Epilepsy, ensuring that current, evidence-based information and advice is available.
• To develop evidence-based guidelines and write protocols/policies for the management of the child/young person with Epilepsy in line with current NICE guidance and Best Practice Guidance, where appropriate/identified.
• Provide written, evidence-based patient information at appropriate stages of the patient’s disease progression and evaluate the effectiveness of interventions and treatment protocols.
• Have an active role in the delivery of structured education to schools, nurseries, and other agencies.
• ✅ Be responsible for ensuring the planning, delivery, and evaluation of care to meet the personalised health and wellbeing care needs of patients, in line with the Trust’s Values & Nursing & Midwifery Professional Framework.
• Act as a strong role model and provide development, clinical supervision, and advice for other staff and students to support them in reaching their full potential. To provide both formal and informal training and teaching sessions in a variety of health, education, and regional conference settings.
• To ensure the productive operation of the team environment through the maintenance of a safe, clean, and organised environment.
• To act at all times in a manner that upholds the Trust’s values and Nursing & Midwifery Professional Framework goals, working as part of a team to ensure that patients and relatives receive excellent care with compassion


This advert closes on Sunday 17 Aug 2025

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